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Parents, Caregivers & Youth
Find an EPIC-IC Medical Home practice for your child!
- A family-centered medical home is not a building, house, hospital, or home healthcare service. It is an approach to providing comprehensive primary care.
- In a family-centered medical home the pediatric care team works in partnership with your child and your family to assure that all of the medical and non-medical needs of your child are met.
- Through this partnership the pediatric care team can help your family access, coordinate, and understand specialty care, educational services, out-of-home care, family support, and other public and private community services that are important for the overall health of your child and family.
- The American Academy of Pediatrics (AAP) developed the medical home model for delivering primary care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective to all children and youth, including those with special health care needs.
A World of Resources
Check out our Resources Database! Find health, education, safety, transition, child care and other resources for parents and caregivers of children and youth with special health care needs.
About Me
Basic Information
- Gender
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Female
- Birthdate
- 05/22/1985
Contact Information
- Country
- US
Profile Questions
- I am
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A parent or caregiver to a child or youth with special health care needs
- If you'd like, please share a little bit about yourself and your child/children.
- i'm a married stay at home mom of 2 beautiful girls. one is 15 months and the other is 3 1/2years old..she is autistic.
- Do you live in Pennsylvania?
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Yes
- What PA County do you live in?
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jefferson
- Please share some key areas of interest in the field of child health.
- i would like to talk to other mothers who have autistic children to see what they are like, and what you are doing to help them. does anyone want to share their opinion about vaccines and autism?
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Groups
momof5
- Member since
- Wednesday, February 18, 2009
- Last online
- Never logged in
- Profile views
- 93 views
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Hi Lori, It's only be over a year and I never replied back to you. Better late than never. Yes, my boys, ages 9 and 7. 9 y.o. has Asperger's and is very defiant (got suspended from school 4 times this year) and the 7 y.o. is NT and is a very good brother and son. Both are good kids but we definately have our moments with the 9 y.o. Jen
681 days ago
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Don't mind your asking. My oldest has Aspergers, ADHD, Anxiety Disorder, Oppositional Defiance Disorder, GERD, Hiatal Hernia, Erosive Esophagitis. My middle son has Autism, Mild MR, Tourette's, Hiatal Hernia and GERD as well. My youngest has a dairy allergy, but so far aside from some minor sensory and oral motor issues, he isn't showing signs of being on the spectrum and didn't qualify for services since turning 3. I have inoperable cavernous angiomas in the brain and spinal cord which make all this even more difficult to deal with. Thank God for my healthy husband.
1158 days ago
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Hi Everyone, I don't want anyone to think that I am ingnoring them. I came back from Philly with some bad news about my son's eyes. Then on top of that I found out yesterday that my Grandmother died. I will email everyone when I can over the next few days. Thank you for understanding Lori
1159 days ago
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Hi Everyone, I don't want anyone to think that I am ingnoring them. I came back from Philly with some bad news about my son's eyes. Then on top of that I found out yesterday that my Grandmother died. I will email everyone when I can over the next few days. Thank you for understanding Lori
1174 days ago
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That is me, my husband and our 3 sons. The one on the far left is 7. He has severe apraxia of speech with a phonological disorder and ADHD. In the middle is our 9 year old who has Asperger's and something that seems like IED. It sounds like your 15 year old has similar issues. Our 6 year old on the far right is a typical Kindergartener. :)
1174 days ago
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Hi momof5!! My 8 yr old has a cleft palate that has a layer of skin over it so it wasn't diagnosed until he was 2 and had to get his tonsils and part of his adenoids out that we even knew he had a cleft palate. They couldn't take all of his adenoids out due to the cleft palate. They said if they removed all of the adenoids then everytime he ate or drank it would come out of his nose. I was shocked to find out he even had a cleft palate, but it did explain a lot about why I couldn't nurse him and all of his ear infections!! He still has tubes in both of his ears due to ear infections!! The Klippel-Feil syndrome is where the bones in his neck and shoulder are fused together so his one shoulder is always raised. We just have to watch for curvature of the spine when he is older due to the syndrome!! Did your son lose his hearing when he was older or was he born with hearing loss? I think my son Seth has a mild hearing loss due to all of his ear infections. It sounds like you really have your hands full with your children! Maybe we can keep in touch !
1177 days ago
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Thank you for the welcome! The boy in the picture is my son; he is 11 in that photo, but looks pretty much the same now, at nearly 14, as he did back then. He was all smiles & very excited that day b/c it was the day we brought home his new wheelchair, which you can see in the photo.
1178 days ago
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Hi, Welcome to the group. Are the boys in the picture yours? I have 6 children. Five boys and 1 girl. My 15 yr old has autims, ADHD, and asthma. Two of my other children (Boys) have disABILITIES. I am sure this website will give you the support you are looking for. Take care Lori
1179 days ago
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Hi I have 4 boy's 25,22,18,and 11 the 11 yr old has autism,adhd,asthma,and MR. and you would think that I'm pulling out my hair with him; but it's the other way around the older (typical) boys are the one's who drive me up the wall and down the other side isn't that ironic :) :) :) roberta from philly
1183 days ago
News
Awareness in May
Crossing Systems 101
04 May 2012
Read more...
Pennsylvania Families Inc. in partnership with the Pennsylvania Systems of Care Partnership will be presenting Crossing Systems 101. Learn about this event by clicking "Read more"!
PA System of Care Expansion Planning Grant Survey
25 April 2012
Read more...
Whether you're a parent of a child or youth with special health care needs (CYSHCN), a medical provider serving the special needs population, or a youth with a special health care need(s), the Pennsylvania System of Care Partnership would like to hear from you!
