Especially for Parents, Caregivers & Youth

Especially for Parents, Caregivers & Youth


Join the best community on the web for parents of children and youth with special needs. Get access to the forum, talk with other parents, comment on current events, and find or promote activities in your area.

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Parents, Caregivers & Youth

Find an EPIC-IC Medical Home practice for your child!

  • A family-centered medical home is not a building, house, hospital, or home healthcare service. It is an approach to providing comprehensive primary care.
  • In a family-centered medical home the pediatric care team works in partnership with your child and your family to assure that all of the medical and non-medical needs of your child are met.
  • Through this partnership the pediatric care team can help your family access, coordinate, and understand specialty care, educational services, out-of-home care, family support, and other public and private community services that are important for the overall health of your child and family.
  • The American Academy of Pediatrics (AAP) developed the medical home model for delivering primary care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective to all children and youth, including those with special health care needs.

A World of Resources

Check out our Resources Database! Find health, education, safety, transition, child care and other resources for parents and caregivers of children and youth with special health care needs.

Recent activities

News

Event tomorrow! "So You Have a Trust, Now What?"

20 May 2013
Event tomorrow!

Tomorrow evening, ABOARD's Autism Connection of PA is hosting a FREE workshop for families of CYSHCN who have set up a special needs trust for their family member.  Registration is required, and there is a limited number of seats left!

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Additional Parent Youth Professional Forums (PYPFs)

16 May 2013
Additional Parent Youth Professional Forums (PYPFs)

A few weeks ago, we posted about one of the Special Kids Network's Parent Youth Professional Forums (PYPF) in King of Prussia, PA.  There are several additional PYPFs taking place throughout the state in May and June, and families of CYSHCN are encouraged to attend!  Click "read more" to get details about a PYPF taking place near you.

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Workshop: Advocating for Your Child with Special Needs

14 May 2013
Workshop: Advocating for Your Child with Special Needs

On Tuesday, May 21st, Cathy Roccia-Meier of the Institute on Disabilities at Temple University will present a FREE workshop for parents and caregivers of CYSHCN at Shriners Hospital for Children.

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